Establishing Patient Health Registries

Listing Websites about Establishing Patient Health Registries

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Planning a Registry

(5 days ago) WEBThere is tremendous variability in size, scope, and resource requirements for registries. Registries may be large or small in terms of numbers of patients or participating sites. They may target rare or common conditions and exposures. They may require the …

https://www.ncbi.nlm.nih.gov/books/NBK562567/

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Patient Registries - Registries for Evaluating Patient …

(5 days ago) WEBThe purpose of this document is to serve as a guide for the design and use of patient registries for scientific, clinical, and health policy purposes. Properly designed and …

https://www.ncbi.nlm.nih.gov/books/NBK208643/

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Registries for Evaluating Patient Outcomes: A User's …

(5 days ago) WEBpatient partners in registry design and operations. The second addendum to the Third Edition, Tools and Technologies for Registry Interoperability, was published in …

https://effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-evaluating-patient-outcomes-4th-edition.pdf

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21 Century Patient Registries - Agency for Healthcare …

(7 days ago) WEB21st Century Patient Registries . Registries for Evaluating Patient Outcomes: A User’s Guide 3 rd Edition, Addendum Prepared for: Agency for Healthcare Research and …

https://effectivehealthcare.ahrq.gov/sites/default/files/registries-guide-3rd-ed-addendum-research-2018.pdf

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Registries for Evaluating Patient Outcomes: A User's …

(6 days ago) WEBThe fourth edition of the AHRQ publication, "Registries for Evaluating Patient Outcomes: A User's Guide," is a reference handbook that provides best practices to guide design, …

https://effectivehealthcare.ahrq.gov/products/registries-guide-4th-edition/users-guide

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Registries fact sheet 2022 - American Heart Association

(9 days ago) WEBRegistries play an essential role in providing meaningful, actionable data about the healthcare needs and the services used by populations of patients that traditionally …

https://www.heart.org/-/media/Files/About-Us/Policy-Research/Fact-Sheets/Clinical-and-Post-Clinical-Care/Clinical-Registries-Fact-Sheet.pdf

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Patient focused registries can improve health, care, and …

(1 days ago) WEBEugene Nelson and colleagues call for registries of care data to be transformed into patient centred interactive learning systems Large scale collection and analysis of data …

https://www.bmj.com/content/354/bmj.i3319

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Put Your Clinical Data to Work With a Registry AAFP

(5 days ago) WEBA registry is a population health tool that excels at organizing data for a group of patients and providing timely, actionable reports that can be used for care management and …

https://www.aafp.org/pubs/fpm/issues/2021/1100/p21.html

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Digital Health and Patient Registries: Today, Tomorrow, and the …

(5 days ago) WEBAs use of new technology increases in medical practice and clinical research, registries are uniquely positioned to leverage these innovations to support real-world data collection. …

https://www.ncbi.nlm.nih.gov/books/NBK493822/

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Registry of Patient Registries (RoPR): Overview Effective Health …

(5 days ago) WEBDevelopment of the RoPR Background: A patient registry is an organized system that uses observational research methods to collect data for the scientific assessment of …

https://effectivehealthcare.ahrq.gov/products/registry-of-patient-registries/overview

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Registry of Patient Registries - Agency for Healthcare Research …

(6 days ago) WEBThe Registry of Patient Registries project and funding ended on April 15, 2019. The purpose of this project was to engage stakeholders in the design and development of …

https://www.ahrq.gov/ropr/index.html

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Abstract Methodology Outcome - NAACCR

(8 days ago) WEBThe state cancer registry collects cancer data regardless of where the cases were diagnosed or treated. The exchange of data between cancer registries is important to …

https://www.naaccr.org/wp-content/uploads/2016/11/P-25.pdf

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Datavant The Leader in Data Logistics for Healthcare

(5 days ago) WEBDatavant is a data logistics company for healthcare whose products and solutions enable organizations to move and connect data securely.Through proprietary technology, the …

https://www.datavant.com/

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The first national pediatric immune thrombocytopenia registry in …

(8 days ago) WEBBackground Disease registries are comprehensive databases that record detailed information on patients diagnosed with specific conditions, providing valuable insights …

https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-024-11102-z

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Defining Patient Registries and Research Networks

(5 days ago) WEBPatient registries have been defined as “an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes …

https://www.ncbi.nlm.nih.gov/books/NBK164514/

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The German Multicenter Registry for ME/CFS (MECFS-R)

(1 days ago) WEBBackground: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating multisystemic disease characterized by a complex, incompletely understood etiology. …

https://www.mdpi.com/2077-0383/13/11/3168

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Registries for Evaluating Patient Outcomes: A User’s Guide, First

(1 days ago) WEB“Patient Registries” defines and characterizes types of registries, their purposes, and uses, and describes their place within the scope of this document. “Planning a Registry” …

https://effectivehealthcare.ahrq.gov/products/registries-guide/research

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Identifying Patient Race and Ethnicity - Georgia Department …

(8 days ago) WEBThe identification of a patient’s race and ethnicity can be difficult, since often hospital admission clerks and even patients themselves do not know the way in which the …

https://dph.georgia.gov/sites/dph.georgia.gov/files/gccr.registerwinter.03.pdf

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Trauma Center Designation Process

(9 days ago) WEBI. The OEMS/T will then notify the facility and Regional EMS Council of the decision on confirmation or denial of Trauma Center Designation. J. For re-designation and upgrade …

http://georgiatraumafoundation.org/wp-content/uploads/2015/04/trauma-center-designation-process.pdf

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Developing a Registry of Patient Registries: Options for the …

(7 days ago) WEBThere are a number of reasons why establishing a registry of patient registries (for patient registries with a research purpose) would be highly beneficial to a number of …

https://effectivehealthcare.ahrq.gov/products/registry-of-patient-registries-development/research

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Principles of Registry Ethics, Data Ownership, and Privacy

(5 days ago) WEBThis chapter covers the ethical and legal considerations that are relevant to the development and use of all health information registries, including patient registries …

https://www.ncbi.nlm.nih.gov/books/NBK562583/

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