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Research and resources Understanding patient data

WebPutting transparency into practice. Transparency is important for creating trustworthy systems for managing data but there isn't a common understanding of what it means. …

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URL: https://understandingpatientdata.org.uk/research-and-resources

WHAT HAPPENS TO HEALTH DATA

WebLarge datasets have the potential to improve many aspects of healthcare, and are the main focus of this guide. All health services need data to work efectively, and always. …

Category:  Health Go Health

Frequently Asked Questions Understanding patient data

WebWhenever you interact with the health service, such as during a GP appointment or hospital visit, they collect data about you, your health and your lifestyle. This is recorded and …

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How is data kept safe

WebA common framework for assessing and explaining how data is being kept safe is the ‘Five Safes’ Framework. This was initially developed by the Office for National Statistics and …

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Understanding Patient Data

WebOur animation series show how patient data is used to improve health and care, and the safeguards to protect confidentiality. They are available for anyone to reuse under a CC …

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Making better use of NHS data: Where we’re at with the Federated …

WebUnderstanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.

Category:  Health Go Health

What are the best words to use when talking about data

WebThe best way of avoiding this is to talk about ‘ information from your patient record ’. Don’t use terms like ‘citizen’, ‘consumer’ and ‘user’ – our research suggested people much …

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Who decides how patient data is accessed

WebWho are they? The National Data Guardian for Health and Care (NDG) advises and challenges the health and care system to ensure people’s confidential information is …

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Why is it important to use patient data

WebImproving health, care and NHS services. If small amounts of data from many patients are linked up and pooled, researchers and doctors can look for patterns in the data, helping …

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About us Understanding patient data

WebUnderstanding Patient Data was set up in 2016 to support conversations with the public, patients and healthcare professionals about uses of health and care data. It was …

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A number of studies have explored how people feel about the …

WebLast updated 01.08.2019 4 Health data storage and public cloud use (2018) ComRes interviewed over 2,000 people as part of the Corsham Institute report about health data

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Ethics, governance and regulation Understanding patient data

WebThe ethical and social implications of using patient data need to be carefully thought through. To ensure data is used in socially just and equitable ways, the right kinds of …

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Insights from Black & South Asian people on patient data

WebWhy this research? Understanding Patient Data prioritised learning more about the views of Black and South Asian people when it comes to sharing health data because of the …

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How is patient data used

WebThe types of organisations that can use patient data include: NHS providers and commissioners: use data to monitor trends and patterns in hospital activity, to assess …

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Case studies Understand Patient Data

WebThere is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have …

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Introducing patient data Understanding patient data

WebWhat is patient data? Whenever you interact with the health service, such as during a GP appointment or hospital visit, they collect data about you, your health and your lifestyle. …

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Long Read: What does the Data Protection and Digital Information …

WebNicola Hamilton, Head of Understanding Patient Data, gives an overview of the Data Protection and Digital Information Bill and ten key changes that are relevant to …

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Can private sector organisations access patient data

WebResearch shows that most people are comfortable with the private sector having access to patient data if a few conditions are met, with the most important factor being that the …

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