Sicklecelldisease.org

Community Health Worker Training

WEBIf you have any questions, please contact SCDAA Community Impact and Education Manager Kevin Amado at kamado@sicklecelldisease.org or call 410-528-1555. Online …

Actived: 3 days ago

URL: https://www.sicklecelldisease.org/our-initiatives/community-health-worker-training/

Mission & Vision

WEBMission To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while …

Category: Health Go Health

What is Sickle Cell Disease (SCD)

WEBSickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin S, an abnormal …

Category: Health Go Health

Complications & Treatments

WEBThe sickle cells also block the flow of blood through vessels resulting in lung tissue damage (acute chest syndrome), pain episodes (commonly in the arms, legs, chest and abdomen), stroke and priapism (painful prolonged and unwanted erection). It also causes damage to most organs including the spleen, kidneys, eyes and liver. Damage to …

Category: Health Go Health

SCDAA-LMS Signup

WEBSCDLP training is currently available to SCDAA Community Based Organizations (CBOs) members or affiliates, wanting to pursue a career in community health and sickle cell …

Category: Health Go Health

National Sickle Cell Advocacy Network

WEBThe National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by …

Category: Health Go Health

Mental Health and Wellness

WEBSickle Cell Disease (SCD) is a chronic illness that affects both physical and emotional health. Individuals living with SCD may experience chronic pain, fatigue, and other …

Category: Health Go Health

SCDAA and MedicAlert Pilot Program

WEBDuring a sickle cell pain crisis, time is of the essence. SCDAA and MedicAlert have launched a pilot program designed to improve the emergency room experience for sickle cell warriors. Learn more about the program and how to get involved. Participants complete their MedicAlert digital health profile, which contains their physician-approved pain

Category: Medical Go Health

Management of Sickle Cell Disease in Schools

WEBMaryland Department of Health Office of School Health 201 West Preston Street Baltimore, Maryland 21201 Phone: 1-877-463-3464. TTY/TDD: 1-800-735-2258. Maryland State …

Category: Health Go Health

Legislative Initiatives

WEBIn February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. …

Category: Health Go Health

SCDAA and MedicAlert Foundation Launch Pilot Program

WEBHANOVER, MD – Sickle Cell Disease Association of America (), the leading national organization and voice for people with sickle cell disease (SCD), today launched a pilot program with MedicAlert Foundation to enhance the safety and well-being of people living with sickle cell disease (SCD).Acute pain episodes known as sickle cell crises are …

Category: Medical Go Health

COVID-19 Information and Resources

WEBAs we continue to fight COVID-19 in the United States, SCDAA is compiling resources to assist the sickle cell community during the pandemic. The Centers for …

Category: Health Go Health

National Sickle Cell Awareness Month

WEBThank you for joining us for Sickle Cell Awareness Month 2023! Stay tuned for information about our 2024 campaign. September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Read the President’s Proclamation here. SCDAA’s 2023 …

Category: Health Go Health

Newborn Screening Follow-Up Program

WEBThe Sickle Cell Disease Association of America, Inc. (SCDAA) has been awarded $2.9 million annually for the next four years from the Health Resources & …

Category: Health Go Health