Raredisorders.ca

About CORD Canadian Organization for Rare Disorders

WEBCORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a …

Actived: Just Now

URL: https://www.raredisorders.ca/about-cord/

CORD submission to PMPRB Scoping Paper consultation on new …

WEBDecember 20, 2023. Patented Medicine Prices Review Board (PMPRB) 333 Laurier Avenue West, Suite 1400 Ottawa ON, K1P 1C1 Subject: PMPRB Scoping Paper consultation …

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Canadian Organization for Rare Disorders

WEBThe Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders …

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Health Canada Approves IMBRUVICA® (ibrutinib) for the …

WEBIMBRUVICA® is an oral, once-daily, single-agent therapy associated with a durable response in patients with this rare B-cell lymphoma. Toronto, ON – May 12, 2016 – …

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Canadians with rare diseases do not get timely diagnosis and care

WEBPress release for Rare Disease Day, Feb. 28, 2023. MEDIA RELEASE. Canadians with rare diseases do not get timely diagnosis and care – with funding and …

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Canada4Rare initiative aims to ‘Save Rare Lives!’

WEBMarch 23, 2022 (Toronto, Ontario) – The Canadian Organization for Rare Disorders (CORD) is calling on all Canadians to go to Canada4Rare to send to government a …

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CORD Membership Canadian Organization for Rare Disorders

WEBCORD is a national organization comprised of patient groups representing individuals and families affected by rare disorders. CORD provides programs, resources, and a common …

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Rare Disease Day Conference Canadian Organization

WEBDelivering on Canada’s Rare Disease Investment. Rare Disease Day Conference and Networking Reception. March 28 – 29, 2023. Ottawa Marriott. 100 Kent Street, Ottawa. …

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Canada’s Rare Disease Strategy

WEBCanada’s Rare Disease Strategy proposes a five-point action plan that will address unnecessary delays in testing, wrong diagnoses and missed opportunities to treat. 1. …

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Resources Canadian Organization for Rare Disorders

WEBCanadian Directory of Genetic Support Groups: A directory of resources for support groups and disorders CenterWatch: Provides important healthcare information to patients and …

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FAQs: Everything you want to know about Canada's Rare …

WEBThese include misdiagnosis, unnecessary surgeries, social isolation, financial hardship, lack of treatment options and early death. These are the same challenges faced by …

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Time to Jump Start Rare Disease Drug Strategy

WEBCORD RARE DRUG STRATEGY ACTION STEPS: JUMP START ACTION TO DO NOW: 1. Patient empowerment: Empower patient organizations and patient …

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National Strategy for Drugs for Rare Diseases

WEB2 Introduction To help people across Canada living with a rare disease access the drugs they need, Budget 2019 proposed to invest up to $1 billion over two years, starting in …

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Events Canadian Organization for Rare Disorders

WEBCanadian Organization for Rare Disorders 151 Bloor Street West, Suite 600 Toronto, Ontario M5S 1S4 Canada. Tel: (416) 969-7464 / 1-877-302-7273 Fax: (416) 969-7420

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Ontario Rare Diseases Working Group Releases Final Report

WEBCanadian Organization for Rare Disorders. 151 Bloor Street West, Suite 600. Toronto, Ontario M5S 1S4 Canada. Tel: (416) 969-7464 / 1-877-302-7273. Fax: (416) 969-7420. …

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Rare Disease Day 2024 Summit

WEBRare Disease Day 2024 Summit Celebrate with CORD on Rare Disease Day! February 28 — 29, 2024 Ottawa Marriott Hotel, 100 Kent Street, Ottawa, Ontario

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Template letter to Canada’s Federal Health Minister

WEBFellow members of the rare diseases community: Attached is a letter that I just sent to the federal Health Minister, whom I hope to have the chance to meet when I am in Ottawa, …

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Submission by the CANADIAN ORGANIZATION FOR RARE …

WEBCORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, …

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