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Understanding the immune response in people with myasthenia …

WebMyasthenia gravis (MG) is an auto-immune condition that causes long-term muscle weakness. To keep us healthy, our immune system uses specialised cells, called B-cells, …

Actived: 4 days ago

URL: https://www.musculardystrophyuk.org/research/our-research/understanding-the-immune-response-in-people-with-myasthenia-gravis

Duchenne muscular dystrophy (DMD)

WebDuchenne muscular dystrophy is a muscle wasting condition caused by the lack of a protein called dystrophin. It usually affects only boys. About 100 boys with Duchenne muscular …

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MDUK new report ‘Shining a Light’ – the Impact of COVID-19 on

WebWe heard concerns arising because of the pandemic, such as continued delays to accessing critical appointments, mental health impact of not seeing family and …

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Accessing sexual healthcare as a disabled woman: Lauren and …

Web5 April 2024. Lauren and Rebecca are both young women who have muscular dystrophy and are full time wheelchair users. For World Health Day, they share their experiences …

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Alert cards: Why they're vital in an emergency

WebMuscular Dystrophy UK has worked in partnership with specialist health professionals to create 16 condition-specific alert cards. The cards allow people with …

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Studying bone health in boys with Duchenne muscular dystrophy

WebWhat are the aims of the project? Boys with Duchenne muscular dystrophy often have poor bone health and a greater risk of fracture, especially compression fractures in the …

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Emotional and psychological health health professionals

WebThey include: Psychologists who deal with the way the mind works. They specialise in particular areas such as mental health, educational psychology and occupational …

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Supporting our community’s mental health with Louise Halling

WebCounsellor, Louise Halling, is attending our England Information Day to meet members of the therapeutic groups she runs with us in person. As a mum with limb girdle …

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Update on the Scottish Cross-Party Group on Muscular Dystrophy

WebIn July 2021, we published the 'Shining a Light: the impact of COVID-19 and the future of care for people with a muscle-wasting condition' report. We reported on …

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The new integrated care model and muscle-wasting conditions

WebIn July 2022, Integrated Care Systems (ICSs) were formalised as statutory bodies in the health and social care system across England. The potential benefits that greater …

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Support and information

WebCall us on 0800 652 6352 Monday to Thursday 10am to 2pm. If you call outside our helpline’s opening hours, please leave a message and we’ll aim to get back to you within …

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Tube feeding Muscular Dystrophy UK

WebAn nasogastric tube is also very visible and its purpose can be misunderstood by other people. 2) Feeding via a gastrostomy tube, that goes directly into the stomach, is the …

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Hydrotherapy Muscular Dystrophy UK

WebStudies suggest that when patients with muscular dystrophy or related neuromuscular conditions receive physiotherapy in association with hydrotherapy, measurable …

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Studying bone health in boys with Duchenne muscular dystrophy

WebThis three-year fellowship is being jointly funded by the Chief Scientist Office in Scotland, Action Duchenne and Muscular Dystrophy UK. Dr Joseph will investigate bone health in …

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Education Muscular Dystrophy UK

WebGet advice from our information and advocacy service. We offer advice and guidance to parents, professionals and young people. We can help you: choose the right school for …

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Get involved Muscular Dystrophy UK

WebGet involved. We believe in the power of community. That the whole is greater than the sum of its parts. Because the more of us who come together, the greater the impact we’ll be …

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