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FSHD Newly Diagnosed

WEBWhether you have a new diagnosis of facioscapulohumeral muscular dystrophy (FSHD) or have been living with FSHD for some time, we understand that you may experience a …

Actived: 4 days ago

URL: https://www.fshdsociety.org/diagnosis/newly-diagnosed/

Statins (cholesterol-lowering drugs) and muscular dystrophy

WEBThis serious and rare complication is most likely to happen in people taking very high doses of statins, particularly in combination with other drugs. very rarely, …

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FSHD Health & Medical Issues for FSHD Patients FSHD Society

WEBBreathing. Emergency Medical Considerations for FSHD Patients. Facial Surgery. Heart problems. Occupational Therapy and Assistive Technology. Pain Management. Physical …

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FSHD Symptoms & Patient Experiences FSHD Society

WEBFSHD is a neuromuscular disease marked by progressive skeletal muscle weakness, defects in the physical components of muscle, and the death of muscle cells and tissue. …

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For Patients & Families FSHD Society

WEBThe genetic “package” that causes FSHD is found only in people. We owe an enormous debt to the patients who give DNA samples. Who submit to long interviews …

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FSHD Society History

WEBWe are the world’s largest grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The FSHD Society was founded in 1991 by two …

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NAD+ supplementation may help aging muscle FSHD Society

WEBNAD+ supplementation would not cure FSHD, but there is a scientific rationale for thinking it may improve some symptoms, such as muscle damage, muscle …

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Project Mercury FSHD Society

WEBProject Mercury Goals. By 2025, Project Mercury aims to build a global cohort of 10,000 clinical-trial-ready, well-characterized patients; expand and optimize the world-wide …

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Treatments for FSHD: A broader view FSHD Society

WEBThere are many treatments already for FSHD. Indeed, most of the drugs being developed are not a cure but a treatment. A treatment leads to an improvement in …

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First patient enrolls in Fulcrum’s Phase 3 clinical trial

WEBThe much-anticipated Phase 3 clinical trial of losmapimod has formally begun with the dosing of the first volunteer, Fulcrum Therapeutics announced today. The …

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FAQs about genetic testing for FSHD FSHD Society

WEBYes, genetic testing is needed to definitely diagnosis FSHD and determine whether it is Type 1 or Type 2. Once one person in a family has had genetic testing to …

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A Publication of the Facioscapulohumeral Muscular Dystrophy …

WEB2 • FSH Watch • Winter 2015 Board of directors Daniel P. Perez, President & CEO

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UCLA continues commitment to find treatments for FSHD with …

WEBClinical Research Coordinator. Department of Neurology. David Geffen School of Medicine at UCLA. 300 Medical Plaza, Suite B-200. Los Angeles, CA 90095. …

Category:  Medical,  Medicine Go Health

miRecule, Inc., is developing a novel treatment for FSHD

WEBIn their offices in Maryland, just northwest of Washington, DC, miRecule Inc. and its founder Anthony Saleh, PhD, are hard at work developing a novel treatment for …

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Managing breathing issues FSHD Society

WEBThe best practices for managing breathing issues were the subject of the June 19, 2018, FSH Society webinar with John Bach, MD. Bach, of the Rutgers …

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Genetic testing for FSHD—a new frontier FSHD Society

WEBA genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing services. Other companies and …

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Understanding the socioeconomic impact of FSHD

WEBExtraordinary Measures – Understanding the socioeconomic impact of FSHD. An aspect that is often overlooked during drug development is a cost-benefit …

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Medicare coverage for ongoing maintenance physical therapy

WEBActually, Medicare can cover ongoing PT if you therapist feels that such therapy is needed to maintain your current function and slow your decline. If that is the …

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GUIDELINES FOR PHYSICAL THERAPISTS TREATING CLIENTS …

WEBMedicare Maintenance Therapy for Physical Therapists Treating Clients with Neuromuscular Disorders (continued) 2 Maintenance Therapy: Improvement is not …

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Fundraising Webinar: Organizing a Benefit Concert FSHD Society

WEBFrom our series of “Fundraising Masterclasses,” this webinar features Beth Johnston and Judith Seslowe who have co-chaired the our New York City benefit …

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