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“I hope that Jenny continues to heal and has improved health with …

WebCF diagnosis. Jenny was born on 25 January 1999. Her birth was the result of a treatment called pre-implantation genetic diagnosis at the Hammersmith Hospital, …

Actived: 9 days ago

URL: https://www.cysticfibrosis.org.uk/news/i-hope-that-jenny-continues-to-heal-and-has-improved-health-with-new-developments-dad-ivan

How does cystic fibrosis affect the body

WebBody image. Cystic fibrosis (CF) causes the body to produce thick mucus, which affects the lungs and digestive system in particular. Take a look at our interactive body to find out …

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Jon’s story: Kaftrio, side effects and mental health

WebOur Responses to Kaftrio factsheet, provides more information or reach out to our Helpline at 0300 373 1000 or 020 3795 2184, Monday–Friday 10am–4pm, or on …

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Cystic fibrosis and mental health

WebCF and mental health. We all have mental health, good or bad, in the same way that we have physical health, and that means people with CF can experience …

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Cystic fibrosis and bone health

Web2 Cystic fibrosis and bone health Introduction As we get older our bones become thinner and weaker, and may be more likely to fracture. In people with cystic

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Health and wellbeing with cystic fibrosis

WebFamily planning. If you or your partner have CF, and you’re thinking about having children, you might be grappling with a number of issues. Our family planning information has …

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1 in 3 people with CF worry about their health every day shows …

WebCystic Fibrosis Trust today released new data, which showed almost 80 per cent of people with CF said their physical health had prevented them living life to the …

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Tackling health inequality in the CF community

WebThe cost of living with cystic fibrosis (CF) can often feel overwhelming, with the COVID-19 pandemic only adding to the financial uncertainty and hardship many in …

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Housing and cystic fibrosis

WebHousing. Having a safe, warm, and comfortable home is important for everyone, and is especially important for someone with cystic fibrosis. If you have CF, damp and mould …

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Lung Research and Innovation Group publish ten-step plan to fix …

WebThe ten steps are: Promote the urgent need to progress respiratory research and innovation. Identify and communicate top-level research goals. Create a platform for …

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Adam's story: "Kaftrio has been the most significant change of my …

WebAdam's story: "Kaftrio has been the most significant change of my life". We sat down with Adam, a graphic designer who has CF, who spoke to us all about his …

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Looking after your mental health and wellbeing in difficult times

WebYou can call the Helpline team on 0300 373 1000 or 020 3795 2184, or email [email protected]. Samaritans - If you need someone to talk to about your …

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Parents and children

WebParents and children. Find out more here about caring for a child with CF. Parents and children. New diagnosis. Pre-school and primary school. Secondary school. The early …

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Resources for CF professionals

WebResources for CF professionals. Consensus documents. Lay introductions to CF services. SmartCareCF. Supporting clinicians. UK CF Medical Association. We provide a number …

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Calcium and bone health in cystic fibrosis

WebCystic fibrosis and bone health Our bones grow during childhood, and large amounts of calcium are needed - especially during the pubertal growth spurt.

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Individual Healthcare Plan

WebIndividual Healthcare Plan cysticfibrosis.org.uk ©Cystic Fibrosis Trust 2018.Registered as a charity in England and Wales (1079049) and in Scotland (SC040196). A company …

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European cystic fibrosis bone mineralisation guidelines

WebA threshold of 20 ng/ml has also been recommended by the Lawson Wilkins Pediatric Endocrine Society based upon pediatric data available to date [4]. This contrasts with the …

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Going on holiday with cystic fibrosis

WebHere to help. Find out how to contact our wonderful helpline staff by telephone and email. They’re here Monday to Friday to answer your questions, help you access support or just …

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Creon supply update

WebLast updated 13 May 2024. We’ve been monitoring issues with Creon supplies across the UK since late 2023, when some people with CF, their families and CF …

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