Cfgetloud.ca

About Us — CF GET LOUD

WebWe are Canadian CF patients fighting for CF patients. CF Get Loud has quickly become Canada’s largest CF grassroots movement as we fight for access to Trikafta and other …

Actived: 3 days ago

URL: https://www.cfgetloud.ca/about-us

The Drug Approval Process — CF GET LOUD

WebDrug Approval Process. Trikafta was submitted to Health Canada for priority review on Dec 4th, 2020. It is imperative that Trikafta be approved in the broadest possible indication so …

Category: Health Go Health

Take Action — CF GET LOUD

WebThanks to your tireless efforts in getting loud for Canadians with CF, we are currently in an aligned review process for Trikafta.This means that the manufacturer will look to seek a …

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Frequently Asked Questions — CF GET LOUD

WebWhat is Trikafta? Trikafta is the most recent precision medicine manufactured by Vertex Pharmaceuticals. It is a triple combination gene modulator consisting of three …

Category: Medicine Go Health

ALS Action Canada

WebThe paper helped to shape submissions to the PMPRB, CADTH, a Pre-Budget Submission for the year 2021 and define the four primary objectives of ALSAC: …

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Hunter Guindon: An Advocate’s Journey — CF GET LOUD

WebMy journey to advocacy started last winter when I was hospitalized for three weeks with a lung infection. I had plenty of time to browse the internet, and after hearing …

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Health Technology Assessment — CF GET LOUD

WebHealth Technology Assessment (HTA) is designed to support the process of decision-making in health care at policy level by providing reliable information. HTA has …

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CADTH Reimbursement Review

WebCF Get Loud has officially submitted our input to the Canadian Agency for Drugs and Technologies in Health (CADTH) on behalf of our CF patient and family …

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#WEGOTLOUD Spotlight on Jim Wilson — CF GET LOUD

WebNominated by: Beth and Madi Vanstone Elected Official’s Name: Jim Wilson Riding: Simcoe - Grey, Ontario Provincial Parliament How did they Get Loud?: To kick …

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News — CF GET LOUD

WebThe CF community is proud to support Rare Disease Day. We are stronger together.

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#WEGOTLOUD Spotlight on Dane Lloyd — CF GET LOUD

WebYou have been our voice and the voice of all 4300 Canadians who suffer and fight CF everyday! You have stood up for us in the House of Commons and advocated …

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All-Party Emergency Access to Trikafta Caucus — CF GET LOUD

WebWe have been taking part in the CF Community Roundtable with Cystic Fibrosis Canada and CF TreatmentSociety as well as the Emergency Access to Trikafta …

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PMPRB guidelines delayed until July 1st, 2021 — CF GET LOUD

WebOur community has been working all year to fight the new PMPRB guidelines. Fundamentally, they create a huge roadblock for any precision medicine to …

Category: Medicine Go Health

Get Loud for Rare Disease Day 2021

WebThe CF community is proud to support Rare Disease Day. We are stronger together.

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Letter from pCPA to Jim Wilson MPP — CF GET LOUD

WebJim Wilson MPP shared the following letter he received from the pCPA (pan-Canadian Pharmaceutical Alliance) in response to the letter he wrote to the Prime …

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