Cdlsusa.org

Management and Treatment Guidelines for Cornelia de Lange …

WEBCORNeLIA de LANGe SyNdROMe MANAGeMeNT ANd TReATMeNT GUIdeLINeS Based on 2007 Management Recommendations for Individuals with CdLS.* early Childhood …

Actived: 5 days ago

URL: https://www.cdlsusa.org/wp-content/uploads/2018/10/treatment-guidelines.pdf

Navigating Health Care Systems CdLS Foundation

WEBCdLS Health Care Notebook. The CdLS Health Care Notebook is the first of multiple tools from the CdLS Foundation that makes accessing and coordinating care more …

Category: Health Go Health

Targeted Gene Sequencing, Bone Health, and Body

WEBAbstract The aim of this study was to evaluate bone health and body composition by dual-energy X-ray absorptiometry (DXA) in individuals with Cornelia de …

Category: Health Go Health

Roberts Individualized Medical Genetics Center outlines …

WEBPhiladelphia, February 26, 2020 – The Roberts Individualized Medical Genetics Center (RIMGC) at Children’s Hospital of Philadelphia (CHOP) launched in 2014 as a first-of-its …

Category: Medical Go Health

Research Connect CdLS Foundation

WEBThe Foundation is a primary resource for research professionals working in the fields of medicine, education, allied health and others. Through a variety of research programs …

Category: Medicine Go Health

Workplace Inclusivity for People with Genetic and Chronic …

WEBBy Stanley Clark, Guest Contributor Workplace inclusivity for people with genetic and chronic conditions is a critical issue affecting millions worldwide. For …

Category: Health Go Health

Families CdLS Foundation

WEBCdLS Clinics. CdLS Clinics provide families with an invaluable head-to-toe evaluation by a full complement of experts—all in one day. Currently, there are five CdLS Clinics in the …

Category: Health Go Health

Navigating Healthcare Transitions: Pediatric to Adult Medical …

WEBCornelia de Lange Syndrome Foundation 302 West Main Street, #100 Avon, CT, 06001 www.CdLSusa.org

Category: Health Go Health

Meet the Experts CdLS Foundation

WEBMeet the Experts. The CdLS Foundation enlists help from various experts in the medical, educational and professional fields to provide families with the most up-to-date …

Category: Medical Go Health

Research CdLS Foundation

WEBAll CdLS Foundation-sanctioned research activities are approved by the Research Committee, a team of doctors, researchers and parents that ensures that patient …

Category: Health Go Health

Behavioral challenges in children and adults with CdLS

WEBCdLS Foundation | 302 West Main Street, #100 | Avon, CT 06001 | www.CdLSusa.org REACHING OUT. PROVIDING HELP. GIVING HOPE. Behavioral challenges in children …

Category: Health Go Health

Ask the Expert CdLS Foundation

WEBOur Ask the Expert service allows users to email their questions for response from members of our Clinical Advisory Board or Professional Development Committee. …

Category: Health Go Health

Raise Awareness CdLS Foundation

WEBAdvocacy is defined as “the act or process of supporting a cause or proposal.” (Merriam-Webster) In 2006, staff and members of the Foundation’s board of directors traveled to …

Category: Health Go Health

‘I heard 3 things when he was finally out: ‘He’s here, he’s breathing

WEBI have son who has CDLS and is now 37 he lives with us, we first was told he probably wouldn’t be able to do anything, but I proved to the doctors I would love him …

Category: Health Go Health

Scientific Symposium CdLS Foundation

WEBThe CdLS Foundation’s National CdLS Scientific and Educational Symposium occurs biennially prior to the National Family Conference. It brings together physicians in …

Category: Health Go Health

Oral Health Issues Facing Individuals with CdLS

WEBOral Health Issues Facing Individuals with CdLS by Dr. Richard Mungo, D.D.S. CdLS Foundation Clinical Advisory Board Member A daunting task facing parents of a child …

Category: Health Go Health

New!York!Resource!Guide!

WEBCdLS Foundation | 302 West Main Street, #100 | Avon, CT 06001 | www.CdLSusa.org REACHING OUT. PROVIDING HELP. GIVING HOPE. New!York!Resource!Guide!

Category: Health Go Health

The Why & How of BLEND diets!

WEBResults from Our Study at Sickkids BTF were feasible for families GI symptoms: Improvement even with partial BTF Gut microbiome Gut microbiome = Flora in your GI …

Category: Health Go Health

CdLS Webinars CdLS Foundation

WEBThe webinar also highlights the need to consider the linguistic, behavioral and cognitive impairments that are specific to the CdLS population when assessing and treating SM. …

Category: Health Go Health

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