Als-mnd.org

What is motor neurone disease

WEBWhat is motor neurone disease? People who receive a diagnosis of any serious illness, and those close to them, are very likely to have feelings of shock, anger and despair. This is …

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URL: https://www.als-mnd.org/resources/what-is-motor-neurone-disease/

Support for Family & Caregivers

WEBThis guide is catered to the family, friends, and caregivers of people living with ALS/MND. In this guide, the ALS Ligue Belgium discusses the importance of communication and …

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International Alliance of ALS/MND Associations

WEBThe Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. We help …

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Breaking the News in ALS/MND

WEBA primer for Physicians and Allied Health Professionals. Learning objectives: Describe the impact delivering news in ALS/MND can have on patients, caregivers and healthcare …

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Mental Health Support

WEBMental health support throughout the progression of the disease can help a person cope with emotions that can be difficult to manage. Multiple healthcare professionals are …

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Genetic Counselling & Testing

WEBMoreover, a consultation with a genetic counsellor does not mean that a genetic test will be conducted. Instead, individuals use these consultations to decide if genetic testing is …

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Occupational Therapy and Activities of Daily Living

WEBOccupational therapists can support people with mobility, household tasks, self-care activities, home modification, work and occupations, socializing, communication, and …

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Allied Professionals Forum

WEBThe Allied Professionals Forum (APF) brings together healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech …

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Alliance Webinars

WEBMay 29, 2024 – 7:00 AM Eastern Time (US and Canada) This webinar covers the essentials to understand respiratory support in ALS/MND. We look at how breathing is affected, …

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Professor Stephen Hawking

WEBIn 1963, Hawking contracted motor neurone disease and was given two years to live. Yet he went on to Cambridge to become a brilliant researcher and Professorial Fellow at …

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Find ALS/MND associations around the world

WEBSign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations. " *" indicates required fields

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Events for May 2024

WEBThe 2022 Allied Professionals Forum will be held on November 30, December 1 & December 2, 2022 in a hybrid format – both virtually and in San Diego, …

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Kadimastem – AstroRx

WEBKadimastem is a company that is currently testing an “off-the-shelf”, clinical grade astrocyte cell product called AstroRx®. This investigational treatment consists of astrocytes in …

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AB Science – Masitinib

WEBAB Science – Masitinib. Background. Masitinib is an oral tyrosine kinase inhibitor that can inhibit macrophage and mast cell proliferation, while also stimulating their apoptosis, …

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Allied Health Professionals Agenda ALS/MND Connect The …

WEB*All times are shown in Pacific Standard Time (PST) **Times subject to change help ensure it meets the needs of people with MND/ALS? 12:40 – 2:00 PM Poster Luncheon & …

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