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Getting mental health support Muscular Dystrophy UK

WebA community mental health team (CMHT) provides support to people, experiencing mental health problems, within the community. CMHTs are made up of different professionals. …

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URL: https://admin-prod.musculardystrophyuk.org/get-support/health-and-care/getting-mental-health-support

Professionals Muscular Dystrophy UK

WebMuscular Dystrophy UK’s Health Professionals Network is here to support professionals caring for someone living with a muscle-wasting condition. We provide support for health …

Category: Health Go Health

Mental health matters Muscular Dystrophy UK

WebAs part of our Mental Health Matters campaign, Muscular Dystrophy UK will be pressing for change and taking forward the recommendations from the APPG for Muscular Dystrophy …

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The Continuing Healthcare process needs to be appropriate to

WebA lot of people living with a muscle wasting and weakening condition are dependent on Continuing Healthcare (CHC) − care provided by health and social care professionals to …

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'Anxiety controlled my teenage years' Muscular Dystrophy UK

WebMental health is just as important as physical health. Doctors are trained to deal with the problem in front of them; they try to find a solution to an issue or a plan to …

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NICE recommend new treatment option for late-onset Pompe …

WebThe National Institute for Health and Care Excellence (NICE) has published final draft guidance recommending cipaglucosidase alfa (CIPA) plus miglustat as a …

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Helping us understand congenital myopathies: a new study of …

WebSome congenital myopathies and other muscle conditions are caused by changes in the gene that makes a protein called RyR1. In people living with these conditions, different …

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The European Medicines Agency confirms recommendation for …

WebA year ago, in January 2023, the National Institute of Health and Care Excellence (NICE) published final guidance recommending Translarna as an option for treating Duchenne …

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Newborn Screening for Rare Diseases Healthcare campaigns

WebPeople living with a muscle-wasting condition require timely diagnosis to access a wide range of health and social care services. Over recent years, the advancement of access …

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Improving health professionals' knowledge of muscle-wasting …

WebIn 2018 Muscular Dystrophy UK will continue to support health professionals to deliver best-practice care for people with neuromuscular conditions. Below is an overview of the work …

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NICE publishes draft guidance on vamorolone for treating …

WebThe National Institute for Health and Care Excellence (NICE) has published draft guidance that vamorolone, a potential alternative to existing corticosteroids, is not recommended, …

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Accessing sexual healthcare as a disabled woman: Lauren and …

WebFor World Health Day, they share their experiences of accessing reproductive and sexual healthcare, reflect on prejudices they’ve faced and what they feel needs to change. …

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Prenatal diagnosis and testing

WebWhat is prenatal diagnosis? Find out more. In the case of a pregnancy, if one or both parents are 'carriers' of a particular musclewasting condition (see the Muscular …

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NICE starts appraisal process for Duchenne muscular dystrophy …

WebOn 1 August 2023, the National Institute of Health and Care Excellence (NICE) formally launched its appraisal of the Duchenne muscular dystrophy treatment vamorolone. It has …

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Annual Care Advisor conference held to improve care

WebLast month Muscular Dystrophy UK held our annual conference for care advisors and clinical nurse specialists in Bristol. The conference, which was attended by …

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Supporting someone living with myasthenia gravis – share your

WebThis year, the National Institute of Health and Care Excellence (NICE) is appraising three potential treatments for myasthenia gravis to decide whether they should be …

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We’ve been awarded a quality mark for our health and care …

WebWe’ve been awarded the PIF TICK – the UK’s only assessed quality mark for print and online health and care information. Run by Patient Information Forum, the PIF …

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MDUK 2023 Allied Health Professionals Virtual Conference

WebDate Published: 28 July 2023. This July, we held our 2023 Allied Health Professionals (AHP) Virtual Conference. Attended by over 130 cross-specialist AHPs and student …

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Recognising outstanding neuromuscular centres across the UK

WebWe’re delighted to announce 24 neuromuscular centres across the UK are the recipients of our prestigious Centre of Excellence awards. The centres are recognised for providing …

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The Muscular Dystrophy UK Centres of Excellence Awards 2024

WebThe 2023 audit was overseen by our Service Development Committee, chaired by Professor Deirdre Kelly CBE, and an independent Sub-committee, chaired by retired consultant …

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Young Adult Monthly Catch Up: Mental Health and Wellbeing …

WebThis catch up will be joined by Jatin Pattni, a Clinical Neuropsychologist at University College London Hospital. He will be talking about mental health, wellbeing …

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