Patient Data Sharing In Healthcare

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Understanding the Barriers and Facilitators to Sharing Patient

(5 days ago) People also askWhat is health data sharing?Health data sharing is an endeavor involving stakeholders such as data owners, data users, and regulators. Sharing health data among health care entities can yield several benefits that include improving care coordination, care quality, and patient safety while reducing mortality rates, medical errors, and health care costs [ 4 ].Evolution of Health Information Sharing Between Health Care ncbi.nlm.nih.govCan patients share their health data?Patients are becoming increasingly aware of how their health data is used. The accelerated citizen access to GP data initiative being led by NHS England (NHSE) will bring patients closer to their health data. In some instances, patients can now choose to share their own records, for limited uses.NHS England » Data and clinical record sharingengland.nhs.ukWhy do patients want to share clinical data?Patients generally want to share data to improve health care but want more control over sharing their personal health information. Thus, sharing clinical data should involve a degree of transparency in patient compliance.Ethical Issues in Patient Data Ownershipncbi.nlm.nih.govCan intentional attention to health data sharing improve health care?The examples described in this volume suggest how intentional attention to health data sharing can enable unparalleled advances, securing a healthier and more equitable future for all. The Louisiana Public Health Institute and the Greater New Orleans Health Information Exchange (GNOHIE)Sharing Health Data: The Why, the Will, and the Way Forwardnam.eduDoes sharing health data increase citation rate?However, hospitals and academia often have problems with sharing their data, even though the patient is actually the owner of his/her own health data, and data sharing is associated with increased citation rate [ 3, 4 ].Sharing Is Caring—Data Sharing Initiatives in Healthcare - PMCncbi.nlm.nih.govHow do health care providers access patients' medical data?The patient’s medical data are stored in their wallet as an NFT, containing a unique ID and all their health information. When health care providers need access to this information, they request it from the patient’s wallet through the HIE network. The HIE network uses a smart contract to manage NFTs and access control for health care providers.Evolution of Health Information Sharing Between Health Care ncbi.nlm.nih.govFeedbackNational Center for Biotechnology Informationhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7246891Sharing Is Caring—Data Sharing Initiatives in Healthcare - PMCWebIt discusses the partnership announced by Apple in 2018 with 13 major healthcare systems, including Johns Hopkins and the University of Pennsylvania, that will allow Apple to download patients’ electronic health data onto its devices (with consent …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8650083/#:~:text=Using%20digital%20technology%20to%20share%20patient-generated%20health%20data,as%20enhance%20their%20understanding%20of%20their%20own%20health.

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Data sharing: keeping patients on board - The Lancet Digital Health

(3 days ago) WebData sharing: keeping patients on board. When Health Data Research UK recently announced the imminent launch of a new initiative, it titled the press release “Pioneering …

https://www.thelancet.com/journals/landig/article/PIIS2589-7500(19)30163-3/fulltext

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SHARING DATA, SAVING LIVES - American Hospital Association

(1 days ago) WebThe creation and sharing of aggregated patient health information will support more accurate tracking and prevention efforts for disease and other public health threats. The …

https://www.aha.org/system/files/2019-01/Report01_18_19-Sharing-Data-Saving-Lives_FINAL.pdf

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A guide to sharing open healthcare data under the General Data

(Just Now) WebHealthcare data are increasingly essential for improving patient care, particularly in the Intensive Care Unit (ICU) 1,2,3.In addition, the COVID-19 pandemic …

https://www.nature.com/articles/s41597-023-02256-2

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Ethical Issues in Patient Data Ownership - PMC - National Center …

(3 days ago) WebIn addition, Amazon and companies such as Google and Microsoft have also purchased access to patient data. Just as social media platforms and pharmaceutical …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8178732/

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Aggregating multiple real-world data sources using a patient …

(9 days ago) WebA patient-centered health-data-sharing platform successfully aggregated data from multiple sources. Real-world data sources, including electronic health records …

https://www.nature.com/articles/s41746-020-0265-z

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Unlocking the potential of health data to help research …

(Just Now) WebMedical records can be tricky to access because of confidentiality and variability, but data-sharing efforts are helping to overcome these hurdles — without compromising patient privacy.

https://www.nature.com/articles/d41586-022-01205-0

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Sharing Is Caring—Data Sharing Initiatives in …

(Just Now) WebIt discusses the partnership announced by Apple in 2018 with 13 major healthcare systems, including Johns Hopkins and the University of Pennsylvania, that will allow Apple to download patients’ electronic …

https://www.mdpi.com/1660-4601/17/9/3046

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Healthcare data sharing: How to improve patient care …

(Just Now) WebInnovation over fear. The whole future of healthcare is going to focus on the ability to securely share data. To empower providers and patients to take control of their healthcare journey, we need

https://techcrunch.com/2021/07/02/healthcare-data-sharing-how-to-improve-patient-care-in-the-future/

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Sharing Health Data: The Why, the Will, and the Way Forward

(9 days ago) WebIn the context of the COVID-19 pandemic, both data and a lack of data illuminated profound shortcomings that affected health care and health equity. Yet, a silver lining of the …

https://nam.edu/sharing-health-data-the-why-the-will-the-way-forward/

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Study finds the risks of sharing health care data are low

(3 days ago) WebBut they are the ones whose health is at stake; they’re the ones who would most likely benefit from data-sharing.” Instead of asking for patient consent to share …

https://news.mit.edu/2022/patient-data-risks-low-1006

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NHS England » Data and clinical record sharing

(Just Now) WebData and clinical record sharing. Version 1.1, 15 June 2023. This guidance is part of the Data sharing and interoperability section of the Good practice guidelines …

https://www.england.nhs.uk/long-read/data-and-clinical-record-sharing/

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Sharing health data: HIPAA may allow more freedom than you think

(9 days ago) WebThe experts note that HIPAA gives health care professionals permission to share PHI for patient care, quality improvement, population health and more. “HIPAA …

https://www.ama-assn.org/practice-management/hipaa/sharing-health-data-hipaa-may-allow-more-freedom-you-think

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Patient data privacy and access resources - American Medical …

(7 days ago) WebInformation-blocking practices, which impede the secure exchange and use of electronic health information by practices, patients and doctors can stand in the way …

https://www.ama-assn.org/delivering-care/patient-support-advocacy/patient-data-privacy-and-access-resources

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Data Sharing in Healthcare: The Benefits and Challenges

(5 days ago) WebBenefits of data sharing in healthcare. 1. Improved Patient Care. Access to a patient's complete medical history allows healthcare providers to make more informed and …

https://www.graphnethealth.com/knowledge-hub/blog/data-sharing-in-healthcare-the-benefits-and-challenges/

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Global healthcare fairness: We should be sharing more, not less, …

(9 days ago) WebThe availability of large, deidentified health datasets has enabled significant innovation in using machine learning (ML) to better understand patients and their …

https://journals.plos.org/digitalhealth/article?id=10.1371/journal.pdig.0000102

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How HIPAA Supports Data Sharing HealthIT.gov - ONC

(9 days ago) WebPermitted Uses and Disclosures are situations in which a CE, is permitted, but not required, to use and disclose PHI, without first having to obtain a written authorization …

https://www.healthit.gov/topic/interoperability/how-hipaa-supports-data-sharing

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Sharing Patient Information: Pros, Cons and Implications

(2 days ago) WebSuch information blocking will result in potential substantial fines of up to $1 million per year assessed against health IT developers, health information networks (HINs) and …

https://www.complyassistant.com/resources/tips/sharing-patient-information-pros-cons-and-implications/

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Healthcare Data Sharing Is Essential To The Future Of Medicine

(1 days ago) WebHealthcare data encompasses information collected by providers from a variety of sources, including a patient's diagnosis, test results, medications, treatment …

https://www.forbes.com/sites/forbestechcouncil/2022/07/21/healthcare-data-sharing-is-essential-to-the-future-of-medicine/

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From data to action: improving patient outcomes at the CDI2 …

(1 days ago) WebSeveral patients were included in the conference as panelists, discussing their perspectives on data sharing , including what they know about how their data are used …

https://health.universityofcalifornia.edu/news/data-action-improving-patient-outcomes-cdi2-conference

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Factors influencing effective data sharing between health care and

(1 days ago) WebBackground Sharing data about patients between health and social care organisations and professionals, such as details of their medication, is essential to …

https://www.semanticscholar.org/paper/Factors-influencing-effective-data-sharing-between-Bell-Zhelev/539d9acadbcdd6ebef210a8ae917c1ece39e199c

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Healthcare personnel’s perspectives on health technology in home …

(6 days ago) WebThe potential to involve patients in managing their health has also been acknowledged in Caulfield and Donnelly’s connected health model . Previous research …

https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-024-01464-w

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Teaming up with community-based organizations for SDOH work

(2 days ago) WebBuckley also advised healthcare organizations and CBOs to work together to agree on data sharing and eventual program funding for a certain initiative. Both parties …

https://www.techtarget.com/patientengagement/feature/Teaming-up-with-community-based-organizations-for-SDOH-work

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Patient portal: Connect to care online - Mayo Clinic Health System

(2 days ago) WebIf you need support for the patient portal or Mayo Clinic app, call 1-877-858-0398 weekdays from 7 a.m.–7 p.m. CDT. Stay Connected Contact Us

https://www.mayoclinichealthsystem.org/patient-online-services

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Evolution of Health Information Sharing Between Health Care

(4 days ago) WebHealth data sharing is an endeavor involving stakeholders such as data owners, data users, and regulators. Sharing health data among health care entities …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10134022/

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3 healthcare organizations begin EHR implementation projects

(5 days ago) WebFlorida-based Health First has announced an Epic EHR implementation to unify patient information across its locations and optimize workflows. "Epic's mission is …

https://www.techtarget.com/searchHealthIT/news/366586612/Healthcare-organizations-begin-EHR-implementation-projects

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Researchers harness the power of artificial intelligence to match

(2 days ago) WebA free AI-powered website helps clinicians more effectively match patients with the optimal antidepressant using big data. Researchers in George Mason …

https://www.sciencedaily.com/releases/2024/05/240530132740.htm

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GDPR and data sharing: the Pediatric Cancer Data Commons …

(3 days ago) Webexplicitly promotes open data sharing as the default for research. Data for the Common Good (D4CG) founded the Pediatric Cancer Data Commons to facilitate international …

https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(24)00250-X/fulltext

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Ascension Hospitals Reel From Cyberattack, Causing Patient Care …

(1 days ago) WebAscension, one of the nation’s largest medical systems with 140 hospitals in 19 states, has yet to recover from a large-scale cyberattack earlier this month. Lauren …

https://www.nytimes.com/2024/05/23/health/cyberattack-ascension-hospitals-patient-data.html

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What inhibits “speaking up” for patient safety among healthcare …

(4 days ago) WebIn the healthcare industry, the act of “speaking up” refers to when healthcare workers voice their concerns regarding patient safety. This can include issues such as …

https://human-resources-health.biomedcentral.com/articles/10.1186/s12960-024-00916-x

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A lawsuit claims a Palm Beach County health network shared …

(Just Now) WebA recent lawsuit alleges Palm Beach Health Network shared "highly sensitive personal information" with Facebook’s parent company, Meta, according to the South …

https://health.wusf.usf.edu/health-news-florida/2024-05-27/a-lawsuit-claims-a-palm-beach-county-health-network-shared-patient-info-with-meta

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The public’s comfort with sharing health data with third-party

(Just Now) WebHigher education was associated with greater comfort with sharing health data for patient purposes (β = 0.205, p < 0.001) and decreased comfort with sharing …

https://www.nature.com/articles/s41599-020-00641-5

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Inviting Innovation in Cancer Clinical Trials - NCI

(3 days ago) WebThe era of data-driven health care is here, providing still more opportunities to transform cancer clinical research. The emergence of artificial intelligence (AI) solutions, …

https://www.cancer.gov/news-events/cancer-currents-blog/2024/clinical-trials-cancer-inviting-innovation

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‘It’s putting patients’ lives in danger’: Nurses say - CNN

(1 days ago) WebThe number of sensitive data records held by the health care sector grew by more than 63% last year “far surpassing any other industry and more than five times the …

https://www.cnn.com/2024/05/29/tech/ransomware-attacks-hospitals-patients-danger/index.html

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Vulnerability to Cyberattacks and Sociotechnical Solutions for …

(4 days ago) WebBackground: Health care organizations worldwide are faced with an increasing number of cyberattacks and threats to their critical infrastructure. These cyberattacks …

https://www.jmir.org/2024/1/e46904

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Hospitals Can Push Patient Hack Notifications to UnitedHealth

(2 days ago) Web2:04. Hospitals and clinics can require that UnitedHealth Group Inc. notify patients if their data was compromised in a massive February cyberattack on the …

https://www.bloomberg.com/news/articles/2024-05-31/hospitals-can-push-patient-hack-notifications-to-unitedhealth

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